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Welcome to NJ/PA Eosinophilic Information |
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Eosinophils
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EGID?
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We have a
new name! Recently
renamed “NJ/PA Eosinophilic Information”, we provide news and direction
toward resources in the New Jersey / Pennsylvania area, as well as across the
internet, for those dealing with Eosinophilic Esophagitis (EoE) and other Eosinophilic Gastrointestinal Disorders
(EGID). Please note our Links section for a list of Eosinophilic Treatment
Centers around the country, organizations that
assist the eosinophilic community, and links to
information about food products that may be helpful with elimination diets. Our new Support page lists support groups that can be found online and
around the U.S., as well as groups in the U.K. and Australia. While this site
was initially created to provide information for local support of those
dealing with eosinophilic esophagitis
and eosinophilic gastrointestinal disorders, the
scope and purpose has expanded. |
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Camp TAG FAAN’s
Camp TAG, a new day camp
for kids 4-12 who are dealing with food allergies, opened in 2011.
They are currently taking online registration for Tall Pines Day Camp
in Williamstown, NJ. Camp dates July
9-13, 2012
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The 6th annual National Eosinophil Awareness Week will be 5/13 – 5/19/12 While that week is a great time to spread
awareness about Eosinophilic Disorders, in
reality, we can try to raise awareness every day! In May of 2009, actress/singer Demi
Lovado (Disney star) and Ned Spektor
(manager for the Jonas Brothers) were
honored as APFED's Education Embassadors. Here's a link to the video of their touching speeches at the 5/11/09 Gala in Hollywood: http://www.youtube.com/watch?v=KDV4lq3LU_4 |
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Happy 10th Anniversary to the American
Partnership for Eosinophilic Disorders! That’s 10 years of education, advocacy and
research! So much has been accomplished, but there is still
so much more to be done! APFED has also just added new interactive
pages for kids to
their website, with new characters: “Gus” the esophagus and “Phil” the
eosinophil. They have plenty of new content on their
site:
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9/6/11 UPDATE:
Congratulations to CURED Foundation.
They were the Central Region winners in the Vivint.givesback
project, and have won $100,000! |
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New
consensus recommendations for the diagnosis and management of EoE! This is an important article to read if you are
dealing with Eosinophilic Esophagitis! "Eosinophilic Esophagitis: Updated consensus
recommendations for children and adults"
Volume 128,
Issue 1 , Pages 3-20.e6, July 2011) |
BIG
NEWS!!!! Gene
Site Found For Eosinophilic Esophagitis!!!!! According to a press
release from CHOP and article found on EurekaAlert,
among other sources: “EoE
was linked to a region of chromosome 5 that includes two genes. The likely
culprit is the gene TSLP, which has higher activity levels in children with EoE compared to healthy subjects. In addition, TSLP has
been previously linked to allergic inflammatory diseases, such as asthma and
the skin inflammation, atopic dermatitis.” http://www.eurekalert.org/pub_releases/2010-03/chop-gsf030410.php |
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ICD-9
Codes Please make sure
your Drs are using the new ICD-9 codes, which became effective on
10/1/2008!
558.42 - eosinophilic colitis. these disorders; Over
the past few years, American Partnership for Eosinophilic Disorders (APFED)
worked with the CDC's Center for National Health Statistics (NCHS) to create
unique ICD-9-CM diagnosis codes for eosinophilic gastrointestinal disorders.
It was very important that new specific ICD-9-CM diagnosis codes be created
for eosinophilic gastrointestinal disorders (EGIDs). |
“National
Eosinophil Awareness Week” The
resolution (House Resolution 296) was unanimously passed on 5/15/07! National Eosinophil Awareness Week is
the 3rd week of May, every year from here on out! Having
this week will help raise awareness for all eosinophilic disorders (EE, EGID, HES, & Churg Strauss). Congratulations
to everyone who worked so hard to get this passed (within a month, no
less). Thanks to the parents at APFED
who initiated it, ~And~ THANK
YOU to all of the congressmen & women who agreed to co-sponsor the
resolution! Please
see the NEWS Page for details. |
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****DISCLAIMER**** This website has been set up by the parent of
a child with an eosinophilic disorder, not a
doctor. The information shared on this
website is not intended to replace advice from your licensed healthcare
provider. Decisions regarding
medical care should always be made with your licensed healthcare provider. Please consult your
doctor before making any changes in medical care. No one should ever disregard or
delay seeking medical advice due to the content of this website. |