Welcome to the NJ/PA Eosinophilic Support Group

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Who are we?

We are a support group for adults and parents of children with

Eosinophilic Esophagitis (EE) and Eosinophilic Gastrointestinal Disorders (EGID),

living in NJ, Pennsylvania & Delaware.

We offer:

Bi-monthly local support meetings for adults/parents

Family Outings

Direction towards resources in our area & on the web

Fundraising for research, education, advocacy and awareness

of Eosinophilic Gastrointestinal Disorders

Please be sure to visit our Fundraisers Page

for information about upcoming important fundraising events!

Upcoming Fundraiser

Walk for Hope

When: Saturday, May 31, 2008 2:00 pm

Where: The Village Green Park on 541 Main St in Lumberton NJ 08048

Please visit our Fundraisers Page for details!

The long-awaited ICD-9 codes are being addressed! December 3, 2007 was the deadline for receipt of public comments on proposed revisions that will be discussed at the March 22-23, 2008, and September 27-28, 2008, ICD-9-CM Coordination and Maintenance Committee meetings for implementation of October 1, 2008. According to NCHS, if there are no major objections; our ICD-9 codes are scheduled to be implemented October 1, 2008. It is necessary that new ICD-9-CM diagnosis codes be created for eosinophilic gastrointestinal disorders (EGIDs). Over the past year, American Partnership for Eosinophilic Disorders (APFED) has been working with the CDC's Center for National Health Statistics (NCHS) to create unique ICD-9-CM diagnosis codes for eosinophilic gastrointestinal disorders. Requested codes include: 530.13-eosinophilic esophagitis 535.41-eosinophilic gastritis 558.41-eosinophilic gastroenteritis and eosinophilic enteritis 558.42-eosinophilic colitis. We need unique ICD-9 codes for EGIDs in order to: • Allow researchers to track or identify patients with these disorders; • Develop new treatments specific for EGIDs; • Permit accurate reporting of EGIDs • Improve awareness and coding

Great News!: It’s official! “National Eosinophil Awareness Week” 5/13 – 5/19/07 (1^st annual) The resolution (House Resolution 296) was unanimously passed on 5/15/07! It is officially set for the 3^rd week of May, every year from here on out! Having this week will help raise awareness for all eosinophilic disorders (EE, EGID, HES, & Churg Strauss). Congratulations to everyone who worked so hard to get this passed (within a month, no less). Thanks to the parents at APFED who initiated it, ~And~ THANK YOU to all of the congressmen & women who agreed to co-sponsor the resolution! Please see the NEWS Page for details.

****DISCLAIMER****

This website has been set up by parents of children with eosinophilic disorders.

We are NOT doctors. The information shared on this website is not intended to replace

advice from your licensed healthcare provider. Decisions regarding medical care should

always be made with your licensed healthcare provider. Please consult your doctor before

making any changes in medical care. No one should ever disregard or delay seeking

medical advice due to the content of this website.

Eosinophilic esophagitis, eosinophilic gastroenteritis, eosinophilic gastritis, eosinophilic colitis, eosinophilic enteritis, eosinophilic gastrointestinal disease,

eosinophilic, eosinophil, eosinophils, food allergies, EE, EGID, EG, EC, HES, feeding tube, enteral feeding, g-tube, ng tube, mic-key button, Neocate,

Elecare, EO28, support group, NJ, Pennsylvania